HIV positive family

Divided we fall

From July 20th to 25th the international community will gather at the International Aids conference in Melbourne to explore strategies to beat the greatest pandemic of our times. HIV still kills 1.6 million people every year, most of them in poor countries of sub-Saharan Africa. In order to bring life-saving antiretroviral treatment (ARV) to the 16 millions who still need it worldwide, it is crucial to alleviate one of the main barrier preventing them to access care: distance to the health centers where they can get these drugs. The community models of care are a way to allow them to live by simplifying ways to access treatment.

In the Gutu district of rural Zimbabwe, the introduction of the Community ART Group by MSF has transformed for the best the lives of people living with HIV.

When 68 years old Arnon Chipondoro learned that his daughter Elizabeth was HIV positive, a wave of relief washed over him. “Me too!”, he said, embracing her. He had been living with his secret for three years – a secret he suspected was shared by many others in his village. In Zimbabwe, one in seven adults live with the virus and it strikes indiscriminately, as far out as his remote village of Lowlands, a scatterings of thatched huts dispersed through the savannah.

Sneaking out of the house

For the past three years, Arnon had been sneaking out of his house at 4am to trek through the bush under the star-lit sky. Discreetly: if the neighbors saw that he was going there too often, they would start gossiping about his having HIV. Arnon would only turn on his cell phone flashlight when he was crossing the river separating his village from Gutu town, pants hiked up to mid-thighs, careful not to slip on the wobbling rocks. “It’s the best shortcut”, he says. “During the rainy season I’d have to walk along the road and it would take five to six hours to make the trip”.

'We don't have to queue'

On good days, he would make it to the clinic by 7am – early enough so that only the people who had slept on the clinic’s porch were ahead of him on the line of patients waiting to see their nurse or doctor. He’d be out of there by mid-day, rushing back home to make it by nightfall. “And that was just to pick up the drugs, nothing more. We wouldn’t even see a doctor because people like us, who are doing well on treatment, don’t need a check up every visit”, his friend Varaidzo Chipunza chimes in. “But now it’s different. Now we’re fast tracked: when we go to the clinic our tablets have already been prepared and we don’t have to queue”.

Annual doctor consultation

Varaidzo belongs to Arnon’s Community ART Group, or CAG, a model invented by MSF that has been introduced in the Gutu district of Zimbabwe a year ago. In a CAG, only one group member travels to the clinic each time to pick up the drug refill for all of them. It means that today Arnon only has to make the trip to the clinic once a year, when all the CAG members go together to the clinic for their annual doctor consultation and check that their medications are working properly.

Doesn't waste a full day

The other times, instead of him making the journey, his life-saving drugs are delivered in his village, almost to his doorstep, by another CAG group member. It means that he doesn’t waste a full day of tilling his field, that he doesn’t waste a day of an already low income – that he doesn’t have to choose between his long-term health and his short term economic survival. And it also means that now he’s part of a group who will be supporting him if he has trouble with the pills’ side effects, to whom he can talk about the life-long burden that comes with living with HIV. His CAG group took the burden of his secret off his shoulders.

Disease should not be lived in isolation

In Lowlands village, Arnon, his daughter Elizabeth and three others have decided that their disease should not be lived in isolation. In a move of defiance against the virus they’ve named their group “Tashinga” – in Shona it means “We’ve suffered, but fought on”. Elizabeth opens a thin school’s notebook full of neat handwritten notes. “That’s our Constitution”, she explains. Rule number one: if a group member has a problem, the others have to help him. Rule number two: attendance to group meetings is compulsory. Rule number three: group discussions are confidential. And then the list goes, detailing the law that the five has imposed to themselves.

Solidarity created by shared secret

Money is a concern of course: when one of them goes to the clinic, he or she will receive one dollar from each member to compensate for the work day wasted plowing one’s field, and allow him to afford a snack in town. The solidarity created by a shared secret is put to productive use: as there’s always a bit unspent, the group capitalizes every month and plans to invest the capital created to create a communal chicken farm.

Access to treatment despite obstacles

Except that it’s not a secret anymore, not really. The Tashinga group has already started its coming out, speaking to others in the village of the need to get tested and started on treatment so that not only they will not be sick, or die, because of HIV, but research has proven that when ARV treatment works well, the risk of transmission of the virus to others is reduced by up to 96%. Adherence to treatment is key to curb the HIV pandemic, but it can only happen if people are able to access treatment despite the obstacles.

'My life has changed'

“Since the CAG was implemented, my life has changed. Meeting other people who are HIV positive made me accept my status, and now I can talk loudly about it”, asserts Varaidzo. Of course all members knew each other before the creation of their CAG; there is no anonymity in a rural Zimbabwean village. But it was only by accident that they’d learn of other people’s status, by bumping into each other at the Gutu clinic. In fact, they say, there are at least five other people in the village who are also HIV positive. “They don’t want to disclose their status, so they hide by going to another clinic that is even further away”, says Antony Chivanga, Varaidzo’s husband. He giggles. “But we know! They’ll come around and join our CAG”.

MSF has pioneered the Community ART Groups (CAGs) in the Tete province of Mozambique in 2008. It is part of a continuum of community models of care aiming at alleviating two major barriers to accessing and keeping on ARV treatment, distance to health facilities and costs associated to the travel: from giving a six months drugs supply to each patients instead of 30 days refill, to gathering larger groups in urban adherence clubs or organizing rural communities into CAGs. The models are progressively been adopted by countries throughout Southern Africa and have proven to be successful in helping people remain in care for the rest of their lives, which is key to lower risk of transmission and of built-up resistance to the first line of antiretroviral treatments. In Tete, over 90% of the 8.100 people belonging to the groups were still in ARV care after four years, when nationwide retention in care was at only 64% of people with the same profile. In 2012, the CAG model was endorsed by the Mozambican government as a model for people living with HIV. Last July, the Gutu provincial authorities of Zimbabwe gave permission for its district-wide roll out.